Hi. My name is Prynce'Ayr but you can call me Prynce for short. I am 5 years old and I'm in Kindergarten. My favorite foods are CANDY, pizza, chicken nuggets, french fries and hot dogs. My favorite places to go are the park, Sky Zone, Chuck E Cheese and the beach. I love to hang out with my brother Jordan and play on our electronics.
On Monday, November 30, 2015 Dominic was diagnosed with Stage 1, type 2 Rhabdomyosarcoma (Alveolar Rhabdomyosarcoma). On Wednesday December 9, 2015, Dominic began his 42 week cancer protocol. This protocol consisted of weekly chemo therapy treatments, some lasting 8 hours, others 30 mins. In February of 2016, he started his 5 week radiation therapy. After 30 total chemo therapy treatments, and 25 total radiation treatments, Dominic is now cancer free! He followed his protocol without any delays and he kicked cancer’s butt. On Wednesday September 14, 2016, he proudly and anxiously rang the Bell for hope with his family by his side.
Throughout all if this Dominic has maintained a pretty normal life. He still attended pre-school with all his friends, joking with the teachers that his hair is going to grow back blue and curly. He still enjoys riding his 4-wheeler and Dune buggy with his little sister, Sofia following behind. His favorite food is still Macaroni and Cheese, and he still dislikes mushrooms. Over all, Dominic is an inspiration to his family.
Caitlyn was diagnosed with stage 3 Neuroblastoma when she was only 6 months old. We found out because she stopped moving her legs. She was paralyzed from her waist down, due to a tumor the size of a tennis ball wrapped around her spinal cord. After months of both chemotherapy and physical therapy, she beat cancer and is walking and running around just as an 8 year old should! She enjoys playing soccer and gymnastics. She LOVES cats, and of course, hates cancer.
Craig was diagnosed in the fall of 2012 at age 2 with a Disseminated Glioneuronal Tumor which meant it had spread through his brain and spinal cord. He immediately began a rigorous 48 week chemotherapy plan only to have an allergic reaction after 12 weeks. He was placed on a second chemotherapy which stabilized his tumors for almost a year until an MRI revealed the treatment had stopped working. In December 2013 he began a third treatment which again stabilized his tumors and he ended treatment in December of 2014. He was thrilled to start kindergarten in the fall of 2015 until an MRI last October revealed his tumors had began to spread again. He started his fourth chemotherapy which he is currently receiving at Golisano Children’s Hospital. Despite everything Craig maintains a fairly normal life and is currently in 1st grade at Jefferson Road Elementary in Pittsford. He is an honorary captain for the second year for the Pittsford Panthers Varsity Football team and is one of this year’s 2016 Golisano Children’s Miracle Kids. Craig enjoys swimming, riding bikes, painting, having dance parties, playing with friends, and being a big brother to his younger sisters Lily, and Lauren.
Braxton is a kind hearted, brave and energetic 5 year old. He always seems to make people smile with his unique personality and sense of humor. Braxton lives on his family's apple farm with his Dad Mark, Mom Chelsie and two dogs, Sissy and Franky. He is most happy and himself playing outside. Braxton loves to swim, camp, learn about apples and tractors, go on vacation and spend time with all of his family, especially his cousins. This year Braxton has taken on many new adventures such as Pre-K, Camp Good Days Jr, soccer camp and swimming class. When Braxton grows up he wants to be a farmer.
Braxton was diagnosed with Acute Lymphoblastic Leukemia in September 2013 when he was just two years old. He has been on treatment for over 3 years. Braxton currently is receiving daily chemotherapy and is still able to accomplish all of these amazing milestones that a 5 year old does. Sometimes it takes more effort and time but when Braxton has his mind and heart set on something, nothing is impossible. He is scheduled to finish treatment in December 2016. Braxton is so brave and such an inspiration to anyone that loves him, knows him or has heard his story.
Cooper is 6 years old and in 1st grade. Shortly after Cooper’s 4th birthday he was diagnosed with acute lymphoblastic leukemia. Cooper is in remission but still going through treatment. He will be done with treatment in a little over one year. Cooper loves plants, animals, being outside…pretty much anything to do with nature! Cooper also loves art. His favorite forms of art include drawing, painting and working with clay.
Kailee was diagnosed with rhabdomyosarcoma at age 2. After undergoing three surgeries, twenty-five days of radiation, and 42 weeks of chemo, Kailee was found to be cancer-free! Her port was removed six months later. At her 9-month post-treatment scans, Kailee continued to appear completely healthy. Just weeks after that scan, Kailee complained of leg pain and could barely walk. A tumor had grown in her pelvis so large it broke the tip of her femur. After surgery and biopsies, we found that the cancer was not only in her pelvis, but also in her bone marrow, and small spots were developing on her lung and kidney. We were absolutely devastated. Kailee immediately had a new port placed and began chemo. She was to undergo 36 weeks of chemo. Although chemo was proving to be effective, at week 28 chemo was changed to a different protocol. Kailee underwent an additional 42 weeks of intensive outpatient chemotherapy. In August 2016, Kailee completed chemo and is doing wonderful! Her mother, father, and little sister were thrilled to send her off to kindergarten this past fall without worrying about weekly doctor appointments. Kailee has defied all odds through her battles. We know there are no guarantees, but we are blessed to have Kailee in our lives.
Through three years of treatment, ups and downs, appointments and hospitalizations, family and friends have always been there for us, but so has CURE. A CURE parent has been there to greet us, comfort us, help us through every step of the way. Three years of parking that we did not have to worry about. Meals for parents during inpatient stays were provided by CURE. We cannot thank them enough!
Roman is a typical 5 year old. He loves kindergarten, playing outside, baseball and playing games. He also enjoys playing with his little brother Ayden and teaching him all the "important things in life." Roman is incredibly silly and loves to make people laugh and smile.
His favorite place in the world is Disney and will talk your ear off about Mickey and Florida if you let him. His favorite foods are Mac and Cheese, Chicken Nuggets and Bologna sandwiches.
Roman was diagnosed with AML (Acute Megakaryoblastic Leukemia) just before his 2nd birthday in August of 2013. He spent most of the following 5 months living in the hospital receiving intense regimens of chemotherapy. He was declared in remission New Year’s Eve 2013 and came home just in time for his baby brother to be born! Now he continues to have blood work and check ups every 4 months and maintains a clean bill of health!
CURE Childhood Cancer Association is a nationally recognized innovator in peer to peer support for families with children diagnosed with cancer and blood disorders.
We are celebrating our 40th Anniversary! Since 1976, CURE has been the forerunner in developing the concept of parent advocacy, long-term educational assistance and peer-to-peer support.
CURE encourages and assists children, young adults and their families in Rochester and the surrounding region to realistically face diagnosis and treatment cope with their fears and believe in the possibility of life after cancer.
Learn how you can help by visiting our website
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